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Autism: Understanding the ‘spectrum’ | DW Documentary

DW Documentary42:26

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I have experienced bullying from the first to the last grade, on all levels. [Music] Why is mine like me? Why are others different? They have a phenomenon that can be considered a norm variant. We can recreate aspects, so rebuild them. I always say that, my brain and the system can crash. When this system crashes, I am initially unable to act. are no trait stand out life while other severe impairment not only the manations make it difficult around few yearsuc I looked forward to it too much. Expectation. I would say, you know, it's already the case that I noticed in kindergarten and, no matter how trivial it may seem, that I do things differently than others. And I didn't find that particularly strenuous or unusual. It wasn't noticed for years. That's true. Ben and old Henry Easter. [Music] [Music] We always say that Ben would theoretically let at least three of them be all the time, he would let them be for themselves. For Henry, we also have structure. [Music] >> I was already in my childhood. I try to keep myself in large groups of people for a long time. อ [Music] [Music] with very small as a problem. I um always had difficulties walking. Often I lacked a proper autism diagnosis for 15 years. Before that, my parents really took me from doctor to doctor, and quite a few things were probably going wrong. An autistic person is different. They find other people very difficult to understand, to read facial expressions and body language to work out what they're thinking and feeling and how to make friends and be social. They can do it often but hard work intellect rather than intuition. Autism is a neurological developmental disorder symptoms and severity very greatly which is why the categories of early childhood autism asburger syndrome and atypical autism have been abandoned andlaced by the umbrella autism spectrum disorder worldwide researchers tryingorder causes atypical brain and nervous system hello good morning everyone. Tror called or the topic of autism came to us around 2004-5, within that time and phenomenon, it can be considered a norm variant. Do you need it? It was like when I was told at school to go to Sunday school, and that's because they then it's it also makes me at home and that we have to deal with it, I am certainly incredibly safe there. So I think it would be a big problem for Jakob to do things. a strong a bit more than I think that's understandable more pronounced very factual very factual and conversations too. So he doesn't have to present himself in a certain way, also a very competent it's Henry and one is interested in others, actually everything. You have to put your hand here sometimes. >> I also mostly show empathy. So, >> if you are sad, for example, that they have empathy and can sniff. Yes, I actually like that about horses. >> Horses feel, feel a lot, do a lot. >> We noticed that as a baby, so the first ones to scream. Exactly. And not at all, and I also didn't regulate him. He is then in the children children to interpret the feelings of other children. He couldn't assess. Why is Why is everyone? We wanted him to have something because we went further. [Music] [Music] Everything is nice again afterwards, so that the animals are protected. Ben has been fiddling around since the beginning, so in kindergarten, until some beetles were seen. And then we knew, so that we then [Music] ADHD >> yes, again, it has pulled the ground out from under my feet. People autism often devel in topics things. Ben isinated byugs and reptiles. [Music] >> Yes. Hello, welcome, not alone. >> Exactly. And a trained therapy dog. Many autistic people also have a very, very good family, they feel pressured to communicate in a certain way. In my in my communication, all levels and partly what was very difficult for me, a lot and I think that's a very important topic in species-specific, I say I think it's a totally important and very underestimated term, not to be myself with people. I see that I don't have to cognitively compensate for it. [Music] [Music] [Music] An autism spectrum disorder is characterized by the fact that [Music] it is very difficult to spontaneously and without analyzing it to understand the perspective of other people, what other people mean is actually with neurotypical people. That people, that's what's in the diagnostic criteria, especially needs, routines in everyday life and also the sensory, that's something like often unpleasant noises can often become very loud and unpleasant. [Music] >> Is that Sonka? Yes, I have beautiful. I [Music] [Music] was a very good student, even if I didn't understand some things, I wanted to do them, teachers I didn't think it was right. [Music] At the beginning in the classroom, Jakob had a kind of, so that was my impression, and then got to know him better. somehow I him completely, that he has other priorities than the people I know in my environment, and that made my skin tingle. I found that cool. The first time I was really depressed was at the end of 2022. The energy was gone. So I just got up, went there, would have gone home and I slept until 8 p.m. I got up, slept, and the next day was over. The day was ruined. [Music] Everything fits. >> Exactly. >> So. Actually, what we have with the autism diagnosis is very detailed, not. So that was difficult. That was very difficult in kindergarten. Everything still first K strong and also with physical I think from the email program. >> Yes, >> that distracts them. >> Yes. Yes, mentally different. Definitely >> is it simply that suddenly a stimulus can appear >> and that is actually the core of other [Music] then so one for example is and and then someone else looks, we make trouble, anger, disgust, 10 seconds. Mhm. Mhm. Really not easy. >> I don't know. That's a simple result for us. Of course, when it comes to interpreting facial expressions. Mm. >> Many people with autism experience the diagnosis subjectively as being autistic, because they are the structural structural individual and not for football like all the others. [Music] We see six here. I have a number fixed, you can look here at the front. [Music] [Music] [Music] >> At school it is very, very difficult for him. So it shows that he is simply very project at home constantly something he can't imagine things and that is very, very challenging. Where is your pen? >> Okay. [Music] >> Gone. Yes, it's just not for his child film like from this school to a special school, please don't write to me, >> when you see how high his suffering is, then you also say so stupid. I am just and then he has opened up and so that is heart, so that is bad. For autistic children, school is a challenge. It's not only the curriculum that is t socially and conversationally. That's not their way. It's also that they're likely to be rejected and teased and bulled by their peer group. Their teacher may not understand them. So one of the crucial components is that the teacher and peer group to understand the world from an autistic child's perspective and to be supportive not critical. We also have to explain to the autistic person. This is what I do as a clinician. how weird people are and say that they are stupid at times. They are unbelievably cruel and don't understand you. Butentually they will and I don't want the negative comments of others to destroy the selfestem and confidence of the autic [Musik] people in their head. I always say that too. My head is my greatest friend, friend at the same time, predestined for language, for for and my greatest friend tools can put a stop to me when it doesn't suit me at all. the system and when this system crashes up there, then I am initially unable to act. But this is the exception. For a long time we have assumed that autism is by a male and there are few females. But in the last 10 years we made a discovery far more girls and women. So the ratio is actually two boys to each girl. But autistic girls are often much better at camouflaging their autism. They suppress their autistic features and they observe, analyze, and imitate. They act and every day they should be awarded an Oscar for their performance of being a typical teenage girl. But it's exhausting. It's not being authentic and canad to depression. [Music] I experienced bullying from the first to the last grade, on all levels. that were also physical, that took place and could also be very overwhelmed. I tried to respond well to myself. With a lot of trauma. My hands say today: "Hello, my dears. [Music] Because I like you so much. I I want a cookie. Cookie. I understood that. [Applause] So it's not that I now, because I connect with other autistic people in the room, an intense connection there in contrast [Music] but quickly and very spontaneously and intuitively certain behaviors behavior I can understand very precisely where it comes from. >> Yes, I know you don't feel like it. That's a bit difficult. Great. That fits. Wonderful. A special feature of autistic people is that they often have cognition over and can speak, that they are completely underestimated in their breadth, that they then think, well, they can achieve things in mathematics or in other technical fields, and at the same time they don't even come up with the idea that they could have problems. Great, you're done, Egil. And then there is certainly the larger subgroup. These are the people where they have gone so far that they are structured. They can also play through autism. >> Yes, are you done now? [Music] birthday present or when was that? Our everyday life looks very unspectacular. A week of therapy, and I really have to plan everything very, very well. With both children accompanying. We have to work through a lot at home. For autists, it's 500 by heart. For Henry, it was not at all consistent, not to him, why was parenting so difficult? [Music] We can take aspects of human brain development, add stem cells, let these stem cells develop into brain tissue, into human human beings and from people who suffer, and then we can look at the difference. Using stem cellar they have developed a technique that enables them to study the effects of different gen mutations simultaneously in individual cells in what they call brain organoid human min brain [Music] [Music] Okay, >> these are the ones that are really beautiful. Very consistent. There are certain processes that make them feel and that they do again and again, but one must also understand, of course, the person and over can one do it for human tissue and I am already a bit proud of that. Hello, >> hello, hello, >> hello. >> We now have the one that looks really good here and what do you think about it? Do you think that could >> great >> great this real measure in the human brain only very, very stands out to most animals. That is and this very, very very late for predisposition and responsible for very, very many diseases, autism genes are involved in these processes. That will be shown by the future. >> Very good. Great plan. Emila has also actually received autism and um yes, that I could now also go out during her therapy and when I come back, it is reliable. >> Can you choose a shape? >> Mhm. I think. >> Oh, >> I'll do one. >> Yes, >> wait and and did you >> Q. So our goal here as therapists is that the highest environment can then be transferred outwards into other contexts. A big goal, long-term goal, participation and that they can live a determined life. It is um great that I am not someone who is screaming the world. It does and that's what I mean, that's how I function and that's great. >> Not everyone. Autism is a disease. A is recognized far and wide, the glasses in the sense that it is different from others. >> I can also buy myself something. >> Yes, do you have money with you? Oh, >> I would describe my life with two autistic children as a plate. What they really give me is that he looks after himself and is as he is and deserves. is love and acceptance acceptance of who they are to always be there to support them to encourage them and for the autistic person to feel loved that's the best thing that a parent can give an autic is unconditional love autism is a comp and muletedorder makesarch und by those [Music] [Music]